New Form: Research Registry or Repository Form 12.2.2024

A research registry or repository is created whenever identifiable or de-identified (coded) human subjects data or specimens are collected and/or maintained for future research purposes. Access to data in a registry or specimens in a repository might be restricted to the original research team on a study for future analysis for new research aims or might available to outside researchers through a request to the registry manager. Use this form for any registries or repositories including recruitment registries, registries or repositories that are created with data from one study or source, or registries or repositories that collect and maintain data from multiple sources or studies.

Examples of when to use this form:

1. A research team intends to retain identifiable audio recordings from a study for future analysis with yet-to-be-determined aims.
2. A lab wants to create a recruitment registry where participants provide demographic data and complete questionnaires to determine eligibility for future studies conducted by the lab.
3. A lab plans to establish a registry that allows external researchers to request access to data collected in their study.

Please find this form on our Forms page: https://dhr.research.northeastern.edu/forms-guidance/forms/